Posted in Death and Dying, Elderly, Loneliness

Checking-in for a Different Ending

When I heard that Gene Hackman and his wife were found dead in their home, I thought, as most of you did, that there was foul play. It took more than a week to find out what had really happened to claim the lives of Mr. Hackman and his wife, Betsy Arwakawa, and the truth was even more tragically sad than if they had been murdered.

My caregiver support group met the day before the news broke about how the couple had actually died. We conjectured that maybe Hackman’s wife had been struck ill and couldn’t care for herself or her elderly husband who suffered from Alzheimer’s. I looked around at my group of friends, most of whom are the primary caregivers of a spouse living with dementia, and I asked some hard questions: “What if something happened to you? Would your loved one be able to call for help? Does a friend or family member check on you regularly?”

Well, it turns out that we were right about how Gene Hackman and his wife died. Our experience of taking care of someone with dementia made us “experts” on the case.  Family caregivers know firsthand what it means to become so focused on the health and well-being of a loved one, that they don’t make time for their own health or needs. You probably won’t believe this, but 30% of family caregivers die BEFORE their care partners.

Why didn’t the Hackmans have friends or family to check up on them? The news stories tell us that the Hackmans “kept isolated” or “preferred privacy.”  That may make them sound strange or reclusive. Well, Alzheimer’s is a very sad disease. One of the first signs of dementia is social anxiety and the resulting isolation. The person suffering from dementia is aware that they are becoming forgetful, so they pull away from social situations because it’s uncomfortable for them. They don’t want to be embarrassed by forgetting someone’s name or being asked a question they can no longer answer. When they start pulling away, their spouse or care partner might become isolated by default. When you keep refusing invitations, after a while, the invitations stop coming.

The Hackman case is extremely sad, but unfortunately, it’s not unheard of. I didn’t want my friends in my caregiver support group to have to dwell on the sad reality of possibly dying alone, but before we ended our meeting that day, everyone promised to find someone to whom they could be accountable.

If you live alone, or if you live with someone who has dementia, make sure you check in with a friend or family member every day. Just send a thumbs up or a short message. There are 4 people who contact me every day, basically to let me know that they are alive. They send me a short text message, (or their results from Wordle) and I respond accordingly. If you know someone who is in this situation, ask them to be accountable to you. If Gene Hackman’s wife had just checked in with a friend every day, perhaps letting them know she was sick, she might have received the help she needed, and her husband and pets would not have been left alone, unable to provide for themselves.

Consider the investment of those few moments each day for the wellbeing of yourself and your loved ones.

Posted in Bedridden, Caretaker, Death and Dying, Death and Dying, Elderly, Faith, Hospice, pain, pain management, Sickness

A Life of Joy and Peace

Saturday, May 2, 2020

“There is a place of full release, near to the heart of God, a place where all is joy and peace, near to the heart of God.”

I’m sitting at my dying mother-in-law’s bedside. Mark and I have been taking turns sitting with her so she wouldn’t feel alone. Brother Todd came over today too, and that’s been very helpful. I have been caring for this woman for almost 11 years. Caring for her has become my life. Any time I wanted to take a few hours off to run an errand or see a friend, I had to cover myself. Longer trips, to see my own mom, or children and grandchildren, really took planning. I had to make and freeze meals for every day we would be gone so the caregiver would feed her what she liked.

Last week we joked that Mom was going to outlive us all even though she has this football-sized tumor. She has not suffered any pain because of it, other than that one day in December when she was in so much pain that we took her to emergency. They did a scan and found a tumor so big that the doctors shook their heads and said there was nothing they could do. We started Mom on hospice at home just before the new year.

Then, on Wednesday morning, April 29th, Mom woke up with pain in her abdomen. It wouldn’t go away, so I gave her a teeny bit of morphine. She was fine the rest of the day, and on Thursday, when she awoke, I asked if she had any pain. “No pain,” she said. “Praise the Lord! I have no pain!” But by 2:30 in the afternoon, everything changed. The pain grabbed hold of her and made her shudder uncontrollably. Our Livingston hospice nurse, Hana, came right over and determined that the pain was very real. She discussed with us Mom’s need for pain management, and morphine was the only medicine that even touched the pain. I don’t know what changed so quickly, and why the pain took hold the way it did, but here we sit, two days later, watching this woman we love die. We try to keep the agony at bay with morphine. It’s dreadful to be in this position, knowing that the medicine that gives her relief will kill her, and yet having to decide to go ahead with it.

With the increase of morphine, Mom sleeps a lot. I play classic hymns loud enough for her to hear them. Once in a while I’ll look and see her mouthing the words to the hymns.

“And when this flesh and heart shall fail, and mortal life shall cease, I shall possess within the veil a life of joy and peace. Amazing Grace how sweet the sound.”Ami last days

Here you will find 2 1/2 hours of Classic Hymns

Posted in Breast Cancer,, Caretaker, Death and Dying, Elderly, Sickness, Widow

Where O’ Death is thy Sting?

I found this unpublished draft just now. I started writing it 2 years ago when we found out that Mom had breast cancer:

Mom doesn’t usually make it to church on Sunday, but this Easter Sunday she was determined. I was helping her get dressed, and when I pulled her nightie over her head, I noticed a quarter-sized discoloration and puckering on her breast. Not wanting to call attention to it before the service, I quieted my fears and helped her fasten her bra.

As my husband preached that morning, I thought about the secret I was keeping from him, and I prayed for his mom and him. He’s such a good son. He cares deeply for his mom and treats her with such love and respect. He was so happy to have her in church that morning, and she just glowed with love as she listened to her son tell about the Risen Savior.

I didn’t know what the days ahead would hold, but my husband’s words from the pulpit reminded me that I could put all this in God’s Hands. When the last hymn was announced, I helped Mom get to her feet, and she sang with all of us, strong and sure:

Lo! Jesus meets us, risen from the tomb; lovingly he greets us, scatters fear and gloom; Let the church with gladness, hymns of triumph sing, for her Lord now liveth,                      Death hath lost its sting.

Thine be the glory, risen conquering Son;                                                                                            Endless is the victory, thou o’er death hast won!

Posted in Death and Dying

Talking them down

Our oldest daughter, Bethany, is an excellent mother, so what I’m about to share may sound a little odd. Chalk it up to several nights in a row of very little sleep due to sick children, whacked out hormones due to pregnancy and a leaking roof.  Yesterday, I answered a call from Bethany. I could hear 5 year old Kayleigh and 3 year old Logan screaming in the background.

“Mom, you need to talk them down. I just took Logan to the doctor’s and was told that he has a really bad ear infection. The doctor is worried about his eardrum.”

“Oh, dear! Logan’s crying because his ear hurts so badly?”

“No, he’s crying because he doesn’t want to take his medicine.”

“And why’s Kayleigh crying?”

“Well,” yelled Bethany above the din, “I was trying to explain to Logan that if he didn’t take his medicine, his eardrum would burst, but all Kayleigh heard was that Logan’s ear would explode.”

Now I could hear Kayleigh’s words as she wailed, “Oh, my poor, poor baby brother Logan! His ear is going to explode, and he won’t be able to hear anymore! Poor, little Logan!  Ohhhhhhh!

“Let me talk with Kayleigh first,” I said.

“Grammy, sniff, I’m terrified that Logan’s ear is going to explode!”

“Kayleigh, Mommy didn’t really mean that Logan’s ear would explode, but she was trying to help him understand how important it is that he take his medicine. Will you do me a favor, Kayleigh? Will you pray for Logan and ask God to make his ear all better? God will take care of him, and then you won’t have to be afraid.”

“Okay, Grammy, sniff, I’ll pray for Logan in my forehead.”

Soon after Kayleigh talked with God, she felt better and told me she wasn’t terrified anymore. I was on a roll, so I asked to talk with Logan.

“Logan, when I was a little girl, I had an earache so bad that it made me cry too, but then I took the medicine that the doctor gave me, and it was all better! Will you be a good boy and take the medicine?”

“But, Dammy, it will make my EAR EXPLODE!”kayleigh-and-logan

I give up……

Posted in Death and Dying

Uptown Kitty

Suki’s departure day has finally arrived. I have been trying to get one of our daughters to take their kitty for years, and now that it’s happening, I have misgivings. Will she miss me too much? Will she get used to looking down at the busy Chicago streets 6 stories below, rather than watching the goings on of our suburban neighborhood through our front window? Suki has lived in our home for 12 years and this is the only home she’s ever known. When the girls were home, she was definitely their kitty, but for the last 4 years, I was the object of her affection. I’m fond of Suki, but both our mothers, one son-in-law, his mom, our daughter-in-law and maybe even our grandchildren are allergic to cats. When the odds started stacking against Suki staying in our home, Laura and Galen stepped up.

Laura and her husband Galen are “cat whisperers.” They will give her a good home, and she will now get to sit on their laps and lick their hands when they’re trying to type.  I’m looking forward to hearing that Suki (and Laura) survived the flight, and our “Uptown Kitty” is happily adjusting to her new digs.